{"id":5903,"date":"2018-04-27T16:18:21","date_gmt":"2018-04-27T20:18:21","guid":{"rendered":"https:\/\/grafton.local\/?p=5903"},"modified":"2018-04-27T16:20:57","modified_gmt":"2018-04-27T20:20:57","slug":"autism-awareness-month-going-for-the-brass-ring-and-getting-the-golden-horseshoe","status":"publish","type":"post","link":"https:\/\/www.grafton.org\/autism-awareness-month-going-for-the-brass-ring-and-getting-the-golden-horseshoe\/","title":{"rendered":"Autism Awareness Month: Going for the Brass Ring and Getting the Golden Horseshoe"},"content":{"rendered":"

It\u2019s not unusual for a parent to be beaming with pride when their child wins an award. So it may not surprise you that I am incredibly proud of my son, Brendan, who is, on May 4, traveling to Charleston, WV as a recipient of the Golden Horseshoe<\/a> award, which honors students who excel in the study of the state.<\/p>\n

\"\"<\/a>

Author, Bonnie Zampino and her son, Brendan<\/p><\/div>\n

Brendan was diagnosed with autism shortly before the age of three.\u00a0He spent a few weeks receiving West Virginia Birth-to-Three services before entering special needs pre-kindergarten in Jefferson County.\u00a0He was picked up every morning in the handicapped bus and spent his school day in a self-contained classroom, engaging in activities like spinning, toe walking, reciting movies, flapping, head banging, aggression – all of the stereotypical behaviors that comprise autism.\u00a0His outlook was grim.\u00a0As his mother, I pledged to give him every tool available and to work hard to make sure he was able to live his best life. I realized, though, that his best life would likely look much different from what most mothers imagine for their children.<\/p>\n

I believe intensive early intervention was critical for Brendan.\u00a0And by that I don\u2019t mean outside services, because there weren\u2019t any available back then.\u00a0In fact all <\/em>services related to autism were specifically excluded from insurance policies because it was considered educational and not medical or rehabilitative.<\/p>\n

After his nine weeks of birth-to-three services, we were on our own. As a single mom, I didn\u2019t have the funds to hire anyone privately. So, I read and learned and became his therapist.\u00a0It was hard<\/em>.\u00a0Every weekend, I had other children over to play. But these weren\u2019t the usual play dates that neurotypical children might have.\u00a0I stayed with them during their time together and taught him how to take turns, how to ask questions and how to respond to questions and how to do what other kids wanted to do.\u00a0I made visual schedules, social stories, first\/then books, etc.\u00a0I learned how to introduce him to new environments after preparing him extensively.\u00a0We survived the lack of sleep and the meltdowns and the aversions and we just kept going.<\/p>\n

Thankfully, things have changed since then. Early intervention programs<\/a> are more widely available and their value has been proven. For any parent of a child with autism, I strongly encourage you to seek out these services and advocate aggressively for funding. Getting ahead of the issues early \u2014 through diagnosis, services, IEPs and major parental involvement \u2014makes a difference.<\/p>\n

As Brendan began attending school, he had many wonderful teachers to whom I am so grateful. Between the work they did with him in the classroom and the work I did with him at home, he progressed.\u00a0But Brendan did the hardest work of all as he struggled to make sense of a world that was full of confusion and uncertainty.<\/p>\n

Although he had an aide in kindergarten, Brendan was mainstreamed beginning in first grade.\u00a0He received pull-out services and his team of teachers, therapists and administrators worked hard with him.\u00a0Individualized Education Plan (IEP) meetings were true collaborations as we worked to figure out how to help Brendan reach his maximum potential.<\/p>\n

The years weren\u2019t easy.\u00a0Like many individuals with autism, Brendan experienced periods of growth followed by periods of regression.\u00a0He struggled with friendships.\u00a0He hurt people.\u00a0He hurt himself.\u00a0At the age of seven, he spelled a word wrong in class and proceeded to split his head open with a toy out of frustration.\u00a0As a result, he was placed in residential treatment due to self-harm.\u00a0But he persevered and so did all of the teachers and staff who worked with him.<\/p>\n

And slowly his life changed.<\/p>\n

Brendan is now almost completely a General Education student at Harpers Ferry Middle School.\u00a0He has an amazing group of friends.\u00a0He is kind.\u00a0He is articulate.\u00a0He no longer displays aggression or self-injurious behaviors.\u00a0He has learned how to interact socially with both peers and adults.\u00a0His is respectful and a good student.\u00a0He has plans for college and a life like anyone else\u2019s.\u00a0These are all things that we scarcely dared to dream might be possible for Brendan.<\/p>\n

It\u2019s no coincidence that as a mother of a child with autism, I now work at an organization like Grafton. Working here has enabled me to be in a position to both give and receive.\u00a0I\u2019ve learned so much from my experience here and have been given the gift of working with people who understand not only the challenges that my child faces, but also those that I face as a parent of a child with autism.<\/p>\n

When Brendan was in fourth grade, he had the lead role in a school play. Kim Sanders,<\/a> President of Ukeru, brought her entire family to see him shine. The love and concern I have received from this organization makes me a loyal fan for life.<\/p>\n

But, my experience here has also allowed me to give back: to share insights that help caregivers; to positively impact the lives of our clients; to train new hires in the autism experience; to support parents as they work with Grafton staff.\u00a0 It\u2019s been an incredible journey both as a mother and as an employee.<\/p>\n

The Grafton approach supports my belief that trauma-informed care is critical for a child with autism.\u00a0Every aspect of life is traumatic for someone with autism because they can\u2019t predict what will happen next, because lights and sounds and touch and crowds are painful, because they don\u2019t understand social situations. Their brain is in constant fight or flight response \u2013 the very definition of trauma.\u00a0Being able to mitigate those issues and decrease the traumatic impact is so important.\u00a0I know, as a parent, that we have to do this, too. We can\u2019t expect teachers and therapists to do all of the work \u2013 it\u2019s a collaborative effort.<\/p>\n

\"\"<\/a>

Brendan Zampino with a feline friend<\/p><\/div>\n

Today, Brendan is one of the winners of the Golden Horseshoe award.\u00a0I wish I could put into words what a tremendous accomplishment this is, for him, for West Virginia Public Schools and for everyone on Brendan\u2019s team.\u00a0So many dedicated educators and care providers were instrumental in helping him get here.<\/p>\n

May 4th\u00a0is going to be an incredibly special day for me and for Brendan. So yes, I am a very proud mom. And I have faith that, with the right mix of individualized, trauma-informed services, any parent of a child with autism can experience this same pride for themselves.<\/p>\n","protected":false},"excerpt":{"rendered":"

It\u2019s not unusual for a parent to be beaming with pride when their child wins an award. 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